Since I was at the Johns Hopkins Headache Center, my new neurologist has put me on two new medications. I really had hope with him (and I still do!). I am still impressed with how he recognized my visual snow is not an aura.
My first medicine, is a preventative called Effexor (Venlaflaxine). He described it as a “mood” drug, and it is an antidepressant in the SSNRI group. I don’t mind antidepressants if they would help with my migraine, but I think I keep getting put on them because I cry uncontrollably during my appointments. But it is hard to not get upset when you realize you are no longer in control of your life! My migraines tell me when I can sleep, eat, socialize.. everything.
So far I have noticed no effect from the Effexor besides the side effects. I can’t say I am surprised! My appetite is GONE and I don’t even want to eat anymore; I get the dry mouth which I HATE, and then there are the sleep problems! I have never once in my life had trouble sleeping until now. I was such a good sleeper and slept too much actually! And now I wake up every few hours and toss and turn and it’s too hot or too cold or just not comfortable and I’m wide awake. Sleep is one of my triggers as well, so if anything this has made my migraines worse! I’m averaging about an 8 on the pain scale this week.
My second medicine is a rescue medicine called Migranal (Dihydroergotamine Mesylate, or DHE) and it’s a nasal spray:
So far I have tried to use it 3 times and no effect. I have 5 more boxes of it until I can say it completely doesn’t work I guess. It’s weird because I can feel it just sitting in my nose and I have to wait for it all to absorb in. Really not my favorite way to take a medicine, but if it worked I would deal with it!
So I’m pretty much back at square one in terms of relief. I try to not take OTC medicines, but I need to be able to function somewhat at work. I need to get more Botox scheduled this month, but JH takes forever to call me back! If at all. Please call me so I can have needles stuck in my head again!