Rare Disease Day 2016

Rare disease day is February 29th 2016! I just recently found out that one of my diseases is considered rare.

Visual Snow Syndrome aka Persisting Perception Disorder – the persisting visual symptom of seeing snow or television-like static across the visual field, constantly, in all light conditions. It comes with a whole major list of symptoms, including visual disturbances (seeing trails, afterimages, floaters, halos etc.), tinnitus, fatigue, depersonalization and derealization, and brain fog. 

No treatment.

No cure.

Very little research. Most doctors don’t even realize that it is it’s own condition, and will diagnose it as a symptom of migraine. 

Spread the awareness! Tell your story.




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