Chiari Malformation

I have it. My new neurologist (Dr Rao at Hopkins) looked at my MRI for about 2 seconds and diagnosed me with it. I didn’t know what to say besides “oh”. And I thought back to everyone who came to me and said “Have you heard about this thing called Chiari Malformation?” And my answer was always yes, but I’ve already looked into it and I don’t have it. JOKES ON ME.

I’ve got to find exactly which of my MRIs shows it.

So far my treatment is to drink water; 2.5 L a day, which sounds like torture to me.

The more research I do, the more my symptoms match up pretty much exactly.

 

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Cardiac Event Monitor

I got my results through email today. And all I can say for now is

fuuuuuuuuccckk I really did not want heart problems. I am pissed and disappointed at my body. I don’t need this! ANY of this.

Ok, lets calm down… Look at the facts. screen-shot-2016-12-15-at-11-19-06-am

I’m sorry for the shitty quality of this, but JH puts their images in some BS Java application that won’t let me save to PDF. I’m going to try to print a copy at work later.

I was monitored for 21 days which came out to 491.28 hours.

Out of that time, my average heart rate was 98BPM. Tachycardia present for 40% of the time.

Am I dying?! Probably not. But I am WORRIED. What is the treatment for this?? Am I going to have trouble later on in life? Will I eventually die of this even if I am an old lady? I don’t know if I can wait until march for my follow up appointment.

I think I’ve worked myself up into a tachy episode reading these results lmao. Maybe I will try to stretch my back out and calm down.

Reminder to myself: It’s not the end of the world. You will survive this, just like everything else. Just BREATHE.

Brain Fog feelings

Brain Fog is one of the most frustrating things. I’m struggling with it a lot today…

I hate when people think that I am dumb or mean because I cannot respond to questions quick enough, or I’ll just blatantly say the wrong thing.

Two of the more recent examples that got me self conscious are:

1. A conversation with friends about ordering pizza. I used Pizza Hut and Papa John’s interchangeably and really confused everyone about which one I wanted to order.

2. At my job, auditors will ask us questions from memory. I know that I know the answer, but that’s not what’s coming out my mouth. I got most of it wrong.

I know that I am smart. But I also know that I am sick.